Ghana Must Prioritize Rare Disease Care” – Experts Emphasize Need for Improved Healthcare Access
Ghana’s healthcare system is at a crossroads, with experts urging the government to prioritize rare disease care. Dr. Ignatius Awinibuno, Director of Allied Health at the Ministry of Health, emphasized the urgent need to address the healthcare needs of individuals living with rare diseases in Ghana.
Speaking at the commemoration of the 2025 Rare Disease Day, Dr. Awinibuno acknowledged the significant challenges faced by persons living with rare diseases, including limited access to diagnosis, treatment, and specialized care. He noted that despite the global impact of rare diseases—affecting over 300 million people worldwide, including many Ghanaians—there remains a general lack of awareness and resources to support affected individuals and their families.
The Ministry of Health recognizes the plight of persons living with rare diseases and remains committed to addressing their needs under the current national health policy, which promotes equity, inclusion, and collaboration among stakeholders.
Dr. Awinibuno stressed that many rare diseases are genetic in origin, predominantly affecting children, and called for increased efforts in early detection and intervention. He assured that the government would continue to develop strategies aimed at reducing the burden of rare diseases and integrating them into Ghana’s universal health coverage roadmap to ensure that no one is left behind.
Executive Director of the Rare Disease Ghana Initiative, Samuel Wiafe, underscored the financial and emotional toll of caring for individuals with rare diseases, calling for stronger support systems to ease the burden on affected families.
Prof. Ebenezer Vincent Baidoo, a professor at the University of Ghana Medical School, highlighted the country’s achievements in disease prevention, particularly in malaria control and immunization. However, he noted that while infectious diseases are decreasing, genetic disorders and speech and language impairments are becoming more prevalent.
Prof. Baidoo emphasized the need for increased investment in genetic healthcare infrastructure, research, and education to better diagnose and manage these emerging health challenges.
As Ghana’s healthcare system continues to evolve, it is clear that prioritizing rare disease care is essential to ensuring that every individual receives the dignity and healthcare access they deserve, regardless of their medical condition.
